I do not know how much most moms will relate to the behavior issues we have faced with my son, bear-7. Given that he is such a bright and high-functioning kid, and getting older, I have not wanted to go into a lot of details.  But I know there are families that are like us and still searching for answers, which can be costly and very consuming for the whole family. Sensory processing disorder is considered within the autistic spectrum. We are still walking through circumstances in our home that make it a real challenge to go too many public places. Crowds and circuses and fairs, theme parks, they are all too much stimulation and can easily trigger melt-downs. I am sure as the year goes on, I will post more about this and how it has affected our entire family, but for now, it is a consuming summer. I have slowed down my speaking schedule and we are trying to make day-to-day decisions that help our family have peace..and to feel like we are moving forward somewhat.

I wanted to share some today because I found a great website. I visited the site of the only DAN dr. that I know of, in the Jax area, Dr. Buckley.  From there I found some great resources, (drop down to behavior) that encouraged me and reminded me that there are other families out there like us! It is a daunting financial commitment to get into a full program, especially when a kid is so high-functioning, I mean he is excelling in so many ways and we really do not want a label, but definitely having some challenges that put him there anyway. I have tried to glean information where I could. Our pediatricians know and consult with DAN docs, and said they would recommend first the GF diet, which has shown us some improvement. I also should have never left our ABA therapy, so we are back in it for the summer. Even if I just speak to her occasionally for a consult, it encourages me that we are doing the right thing.

I am still looking for a great parents group in Jacksonville, just for some moral support. Just like the years we were walking through grief, it was so consoling to speak with other peers who had walked the walk, I have always wanted to be that for others, to shine some light and give them some hope.

I must admit there are some days that I am on the other end, and needing that support. Will post more on auditory processing and visual processing, which is where we found some great answers as well.

Thank you God for resources and answers, and your unending love and promise while we are still searching.

More info see this post.

This entry was posted on Monday, July 21st, 2008 at 4:38 pm and is filed under Women, home Life, hope, parenting, relationships, special needs. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.